Meet Malachi Castilote. Diagnosed at 18 with a rare terminal illness, Malachi is the oldest living child in the United States receiving treatment for Batten’s Disease CLN2. Facing the challenges of his condition, he turned to art & the community around it as an outlet for coping with the loneliness that often accompanies his journey. Despite the challenges life has thrown his way, Malachi shares a message of resilience: it’s possible to walk through hard things with a smile on your face.

This is his story.

ADDITIONAL RESOURCES

Follow the Castilotte family story: Malachi isn’t the only family member of the Castilotte family diagnosed with the Batten’s Disease CLN2, his sister Maleea also carries the diagnosis. Together this family is sharing their story to raise awareness. Follow along on the journey here!

Connect with Malachi on Instagram: @mmcsdrip | Donate to support his treatment: GoFundMe